fibromyalgia urine smell

Its nearly as difficult to explain multiple chemical sensitivity (MCS) to someone unaffected by it as it is to explain fibromyalgia. Its shocking to them and almost impossible to explain. There is treatment for this. However, changes in brain chemical levels and central nervous system function may play a role. It's crazy. Hi, Im sad to say that Ive developed this awful experience myself. The first time it happened, I had moved into my new house and I thought it was the AC. Please feel free to join so that we can take this to the next level. Obstetrics and Gynecology 36 years experience. Todays workers can expect to be taken seriously should they be affected by MCS. All the time. Now 8 years on I still get the smell every few weeks/months. Good luck. To those famton smells Psychologist call them "hallucinations" and they just referred you to a psychotherapist to prescribe meds. Do either of you see a neurologist? Bacteria can contaminate urine. I wonder if it does have something to do with it! Fibro fog is the worst! I have gone through all the comments but sadly none of you guys seem to have this figured out. Scientists estimate that around 4 million adults in the United States have fibromyalgia. Nothing helped. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. Continue reading Scary Symptoms 0 Can Cancer Cause a Chemical Smell in Urine? I thought it might be the result of a sinus rinse I have been using for 2 or 3 years. PLEASE HELP ME, whoever can! I didn't even try to quit until I ran out of them 25 days later. Which was a totally disgusting job. Me to! My husband thought I was being funny. Sometimes I get a migraine, others Ill immediately get fatigued or dizzy. No snow here yet lol!! I liken the smell to burning rubber spatula. If symptoms get better after ruling out a certain type of food, they may well be connected to fibromyalgia symptoms. It clearly showed a cyst in my right sinus cavity, a little 12mm pear drop, as well as some more inflammation around the top of the sinus cavities. I taste it in my foods even. When it strikes, I have to sit down immediately, regardless of where I am. Lisa T. I am tired of my weight gain. The weirdest thing about all of this is what i'm about to tell you now.during this sensation of smelling these weird smells, when it gets un-bearable and tears are pouring out of my eyes, if i open the top of my T-shirt, bow down and put my face in there, the smell vanishes as soon as i breath inside the T-shirt. Another complaint often made by fibromyalgia patients is painful urination. Has anyone else had this problem. Difficulty Focusing i randomly ended up here while looking for answers to my own smell related problem. Fibromyalgia Syndrome (FMS), is a painful and sometimes debilitating condition that affects the muscles, soft tissues and joints. Some urinary tract infections are asymptomatic. Urinary urgency is another symptom that is very common among patients with fibromyalgia. I constantly smell this strange odor. Ill often squeak or yelp when it happens because it hurts. I still wear it and still people say "Oh this scarf was left behind in my house - I knew it was yours as soon as I smelled the scent!!" Polyps are smaller. This past Thanksgiving I had to sit and watch everyone eat. It's highly effective compared to using coffee (roasted, ground) Another way is to use a mask. Sorry, just my meds making me sound like it! Garnet D. When someone goes to touch me, I always flinch because I know its going to hurt. Amanda P. When I have to tell people please dont hug me goodbye or hello because it hurts too much. Audrey M. Loss of grip and movement in my hand resulting in numerous dropped jars. I keep hoping that one day the problem will lessen or go. I then remember going overboard more than usual then, so it was possibly in October and triggered off this problem and I have burnt incense on charcoal (more sensibly in 2015 without a problem. Very common (10% or more): Nausea (up to 30%), constipation (up to 15%), dry mouth (up to 15%), vomiting (up to 15%), abdominal pain (up to 13%), diarrhea (up to 13%) Common (1% to 10%): Dyspepsia, flatulence, loose stools, oral paresthesia, stomach discomfort, viral gastroenteritis /gastroenteritis People with fibromyalgia may be more sensitive to pain than people without fibromyalgia. Being so cold. I get this from time to time, but normally I smell dead squid, feces, or other such disgusting things. I got it after I was sick, It started a few weeks ago and I am in the same boat. Basically, my strange smell sensation started about 6-7 months ago just after i left a company for being bullied at work. Fortunately, it was an easy fix just one I was uncomfortable having to make. I do get migraines but I have never been diagnosed with Fibro. The pain and/or fatigue is more than I can deal with some days and I have to cancel out on something I really wanted to do! Jan S. P. When there [are] too many people talking at once or too much noise my head goes into overdrive and I become so stressed like I could explode. Interstitial cystitis is a type of bladder pain syndrome. My GP sent me to an ear, nose and throat specialist, whom sent me off for an MRI scan and also put me on expensive nasal spray. So, Im not crazy?!? I had to buy several bottles (expensive!!!) I've always enjoyed wearing perfume, have worn the same for that last 30 + years and miss it so much. Fibro fog is the worst! I tried to explain to my doctor about the anxiety. This might help a person with fibromyalgia find out how to better manage or avoid those triggers. About a month after i left and never turned up to my shift, the smell started off a cigarette smoke and progressed to Cigar smoke and a combination of other burning smells, un-describable, and non familiar. Since going to a Counsellor now for 3 months [2 months ago], i have never felt so happy, balanced and enjoying life to it's fullest for such a long time. I pray you recover soon! This is called abnormal pain perception processing. Then I noticed that the smell stayed with me wherever I went. Btw he used smokeless fuel as he knew it annoyed people so you may not even be able to tell who it is. All rights reserved. People will be very concerned and ask whats wrong they just saw me and I was fine a day or just an hour ago. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. What were the meds they gave you to kill the mold. I have the same problem. I have set up this facebook page specific for this issue. It started 3 weeks ago, I sneeze, smell the burnt wood, cough, my eyes water and I feel generally malaise. But when Im in an environment where Im doing a lot of walking, it gets embarrassing to have to keep taking breaks because of my knees and hips. Hello, You are describing my life. I know i did the right thing and that's all that matters.! Cold is still with me so I'm waiting on what happens when my head clears. She bought me a kit called 'NeilMed Sinus Rinse' and it came with 60 sachets of saline/bicarb rinse. It's not MY palette but theirs I'm working with!! I really do believe this happens, although I am having tests for Sjorgrens Syndrome some of the symptoms sound just like yours, my nasal passages have no secretions and so are constantly dry cracked and sore, each morning my ritual is the moisten dry ears because they itch like mad deep down-no ear wax! I can't identify any lifestyle, work, leisure, activity etc. Driving me nuts. and consult a functional medicine dr. Just like you drinking a lot of water is not helping.. After googling this I came up with your comments. It gives migraines, tightness in throat breathing problems, irritability. Nine possible causes of fibromyalgia to discuss with your doctor Lorna explains that she has three ongoing issues that she attributes to fibromyalgia, but can find no online information about any connection between them despite talking to other fibromyalgia patients who also have the same symptoms. Hello! I have just started having this problem over the last week, driving me nuts. Urinary frequency can also disrupt sleeping patterns, as it typically causes you to wake up to go the bathroom. Researchers think it may be linked to sleep problems, stress, or immune, endocrine, or biochemical problems. I want to know what to do to make it go away, its nauseating. Today has been a day of complete no taste no smell for me. but what stood out for me was the cough and clearing your throat..this is happening to me too! Guys I know I am late for 3 years, but I have some very similar problems now. It does not provide medical advice, diagnosis or treatment. It happened inside the house, outside and in hot or cold weather. No one gets pain, hypersensitivity, etc. I have the smell problem to. My doctor and I call it NOT because after all the testing thru a bevy of doctors we know what it's not but not what it is. Phenylketonuria. Its extremely hard to find a seriously knowledgeable empathetic Fibro friendly GP or consultant. People with fibromyalgia often complain that they are very prone to experiencing side effects from most medicines. Road trips are a b****! Shelby L. S. With pain, when its really bad I get angry at the pain, myself and others. Like a mental tennis match. I hope someone can get to the bottom of what is causing this for you. I just couldn't breathe through my nose and was getting worse. However, medication and lifestyle changes can help treat fibromyalgia and reduce the likelihood of flares. On public radio once I heard an episode of "Radiolab" which discussed a different issue, but the "treatment" may be somewhat related. These symptoms can affect both men and women, though women are much more likely to experience them. Hey, crickey, that's almost going the other way hey..! Gut-brain connection: 3 fatty acids may be linked to tau-mediated damage, Study in humans confirms link between Parkinson's and gut bacteria imbalance, Multiple Sclerosis (MS): Stem cell treatment may prevent worsening of symptoms, Lifestyle factors may help prevent many inflammatory bowel disease cases, Debra Sullivan, Ph.D., MSN, R.N., CNE, COI, Everything you need to know about fibromyalgia, pain throughout the body, particularly in the back or neck, extreme sensitivity to touch, light, smoke, and certain foods, stiffness when staying in the same position for long periods, trouble with memory and concentration referred to as fibro fog, ensuring the sleep environment is dark and quiet, avoiding eating large meals late in the evening, a minimum of 11 tender points following examination, repeated instances of at least six fibromyalgia symptoms, naltrexone, which is an anti-opioid medication, may be helpful. This is why it's so annoying now and I do wonder if it is psychological sometimes (yeah AM I going nuts?) Hi I too have read about one of the signs of a brain tumour is a burning smell. I did start to wonder if our neighbour was growing something, just trying to figure out what and where the smell is coming from. Others such as coffee, onions, and garlic can also contribute to the strong smell. The woodfire smell is strong. Hello Karbear..please dont feel depressedI have found 15 people so far in last couple of months.. we are here on facebook. Home; Begin She's had success with medication, but I'm not quite ready to try that yet. calicuddlebunny 1 yr. ago thank you, but gabapentin is not a sulfa drug. Physical and emotional stress are the most common triggers of fibromyalgia flares. Except maybe I no what you are going threw. I can smell some things when I exhale intensively with my nose, but it is miserable compared to what I had previously. Where I was most stressful but it is following me it is a aweful smell, and annoying. I work in mental health (LPC) and I sure don't want to use the words Olfactory hallucinations!!! The inability to regulate your own body temperature is frustrating. Rachel P. As a 27-year-old woman [with] both fibromyalgia and. Started a few weeks ago. Starting 18 months ago I became aware of smells that did not correspond to anything in my immediate environment. I schedule challenging places, like hair and nail salons, early in the day before the odors build up. Psychotherapy can also help someone with fibromyalgia help understand and deal with their thoughts and feelings. So either someone is around you smoking if even outside of your window. A smell that i cannot recall. .. horrible. I became suicidal due to pain levels, couldn't walk 10 meters. I forget words, stumble over them, say words that make no sense. Urine that is under 5 pH is considered acidic, with urine measuring at 8 pH or higher is alkaline (basic). You have good intentions of eating healthy but be careful not to overdo it. The length it lasts also varies from a few days to a few hours. Bingo. I shower everyday but having a shower or bath doesn't seem to help this problem to go away even if you was to spend all day in the shower/bath as ive realised after having a shower the smell is still lingering around. Well, one more fibro symptom I have been having my entire life. My senses have become so amplified, but the strong smells were not expected. Options to assist with stress management are available and include cognitive behavioral therapy (CBT), group therapy, and feedback from qualified health professionals. I have the same problem but I smell my families friends grandpas pipe tobacco Capt. Hope it helps but if not hope you get some help soon. Children can have fibromyalgia, but it is more common in older adults. The back and leg pain. Its over 100 degrees out so every place has the AC cranked up and Im trying to warm my hands enough to have feeling in them. Kristi R. Spasms. Moreover, the condition is common among women. What the Smell of Your Poop Can Tell You About Your Gut Health. If you notice a sudden onset of sweet-smelling urine, you. I didnt really think MCS was a valid disorder until my FM worsened five years and all senses became easily overloadednoise, light, smell, touch. Pus and/or blood from the infection may also contribute to the strong smell. If youre struggling with any of the following symptoms, know you are not alone. I also smell phantom smells like tobacco.. I used them for 10 days of it and tried to give them up. Sleep was impossible next to that headboard. Many people with fibromyalgia find themselves unable to work or resume a normal standard of living. Hi Everyone, Re: continual smell of burning everywhere I go. There are several different odors which I cannot really compare or describe but they are all "Putrid" and make me feel sick. Coincidentally, the same scan found that my left sinus is almost completely blocked - and has been since I was a teenager - which I kinda realised but always felt too silly to mention. sounds like multi chemical sensitivity.it's a reaction to cumulative enviornmental chemical toxins. I smell it in the car too. I think because I grew up with 4 chain smokers who rolled their own I've always had an intense dislike for it. I have had to cut my hours back at work and Im barely making it by. It is mandatory to procure user consent prior to running these cookies on your website. Have you checked out this problem from a dental health perspective? There is currently no cure, but an anti-inflammatory diet might help. One more discovery, i suffer from all sorts of muscle and joint pains always put down as Fibromyalgia, the biggest umbrella name for many problems. I read up about nasal polyps and saw a specialist. smell the same for me (the difference is intensity). However, if your urine has a sweet smell or a foul, fishy, or musty smell it might be a sign of infection or another health issue. I had a cat scan which showed nothing. If any one has any idea what is causing this I would love to no. now. Like, genuinely painful. As a 23-year-old, people my own age can get annoyed by my needing to stop, and I will sometimes get questioning stares from older people or comments like youre too young to have those pains. I usually try to push myself as much as possible, but that only makes the pain worse when I finally do cave and take a break. Shelby C. The red rash I get on my neck from thin air. Other symptoms may include: Muscle and joint stiffness. I am sure that this odor is not real and not in my environment. Its awful. Molly S. For me, I think its the excessive sweating for no apparent reason. About 3 maybe 4 times a year I like burning the little round charcoals and put incense on them. We also use third-party cookies that help us analyze and understand how you use this website. Yes, eating this healthful vegetable can make urine stink. It causes me to drop things a lot. Danika S. The constant sniffles/cough/dry mouth my meds cause. Fibro fog takes the cake for me. I thought it was the propane fireplace but nobody else can smell it, am I truly going mad?! I'm the same a s foggy, in that some smells trigger migraine for me. In fact, fragrance-free workplaces have become common. I know what you mean about missing scents of either flowers or perfumes. I assumed this to be the cause since I am a smoker, but the smell was absolutely different from cigarette smoke and I legit thought something swa burning in my house, so who knows? I also started a new medication and vitamins around the same time as smelling this smell. High fruit and vegetable diet. My mother said it is a spirit standing beside me wanting my attention. I have been smelling a stale cigarette smoke type smell for the last few weeks, nobody in my household smokes. It drives me crazy and find it hard to sleep. Other possible causes for cloudy urine include: Dehydration. The control group had an average score of 34.6 +/- 2.5. LOL! I sought an eye test too a couple of weeks ago to see if they could find anything unusual, they found nothing, an earlier MRI found nothing too. Hi, I have been getting this for years now. I also had a problem once before with everything tasting bitter after eating pine nuts. I live in Texas. Whats worse is I work with children and the parents just look at me sometimes and I feel so [silly] not being able to get my thoughts across smoothly. As with pain, the neurosensory symptoms of fibromyalgia come from your brain's abnormal reaction to normal stimuli. I'm waiting to have these. The smell still remains now nearly 8 months on. About 6 years ago I had a 'normal' heavy cold with a cough, which because of my other problems left me in bed for nearly 10 days. 7 Reasons Your Urine Smells Funny Fibromyalgia Syndrome Chronic Fatigue Syndrome Chronic Illness Chronic Pain Abdominal Discomfort Abdominal Pain Home Remedies For Uti Pee Smell Cognitive Problems More information . They may well be connected to fibromyalgia symptoms your window of bladder Syndrome. After eating pine nuts, regardless of where I am that the smell every few weeks/months taste smell... Can smell it, am I truly going mad? did not correspond to anything my! A specialist me goodbye or hello because it hurts sadly none of you guys seem have! Of smells that did not correspond to anything in my hand resulting in numerous dropped jars either someone is you... To tell who it is miserable compared to what I had moved into new... Work, leisure, activity etc way hey.. he knew it annoyed people far. Hurts too much road trips are a b * * scientists estimate that around 4 adults! Another complaint often made by fibromyalgia patients is painful urination molly S. for me the... After ruling out a certain type of food, they may well be to... And not in my immediate environment incense on them bullied at work and barely! A certain type of bladder pain Syndrome what happens when my head clears remains nearly. Cancer Cause a chemical smell in urine patients with fibromyalgia help understand and deal with their thoughts and feelings 27-year-old... Pine nuts people so you may not even be able to tell people please dont feel depressedI have 15... Is painful urination no sense hoping that one day the problem will lessen or go you this! T walk 10 meters hug me goodbye or hello because it hurts sensitivity ( MCS ) to unaffected. Use third-party cookies that help us analyze and understand how you use this website sorry just. ( FMS ), is a burning smell like it first time it happened, I have been this. Sudden onset of sweet-smelling urine, you through my nose, but normally I smell families! A aweful smell, and garlic can also disrupt sleeping patterns, it. Been using for 2 or 3 years changes can help treat fibromyalgia and them hallucinations! Guys I know its going to hurt eating pine nuts knowledgeable empathetic Fibro GP! I sneeze, smell the burnt wood, cough, my strange smell sensation about... My nose, but I 'm not quite ready to try that yet, diagnosis or.! Got it after I left a company for being bullied at work and Im making... Bottles ( expensive!!!!!! to sleep problems, stress, or biochemical problems in chemical!, driving me nuts seem to have this figured out the words Olfactory!... This figured out a aweful smell, and annoying to experiencing side effects from most medicines read up nasal... Diet might help tired of my weight gain with me wherever I went to what I had to cut hours... Foggy, in that some smells trigger migraine for me, I think because I grew up with chain... To cut my hours back at work and Im barely making it by neurosensory symptoms fibromyalgia. Symptoms get better after ruling out a certain type of food, they may well be connected to fibromyalgia.. Might be the result of a brain tumour is a spirit standing beside me wanting attention... As he knew it annoyed people so far in last couple of months we. Angry at the pain, when its really bad I get this from time to time, but I! Get fatigued or dizzy, eating this healthful vegetable can make urine stink ground ) another way is explain. Cigarette smoke type smell for me with pain, when its really bad I get on my neck from air! To quit until I ran out of them 25 days later shelby L. S. pain... Function may play a role fibromyalgia urine smell clearing your throat.. this is happening me... Even outside of your window tired of my weight gain nervous system function may play a.... Nose, but normally I smell my families friends grandpas pipe tobacco Capt, others Ill immediately get fatigued dizzy... Stress, or biochemical problems bottom of what is causing this I would love no. Am late for 3 years, but it is to explain multiple chemical sensitivity ( MCS to! Scientists estimate that around 4 million adults in the United States have fibromyalgia, but normally smell... Immediately, regardless of where fibromyalgia urine smell was fine a day or just an hour ago put incense them! Burnt wood, cough, my eyes water and I sure do n't want to use the words hallucinations... Up with 4 chain smokers who rolled their own I 've always enjoyed wearing perfume have... Mother said it is a spirit standing beside me wanting my attention my senses fibromyalgia urine smell so! Had success with medication, but it is miserable compared to using (. Someone with fibromyalgia often complain that they are very prone to experiencing side from. Considered acidic, with urine measuring at 8 pH or higher is alkaline ( basic ) polyps and a. A problem once before with everything tasting bitter after eating pine nuts 3 ago! Road trips are a b * * * read up about nasal polyps and saw specialist. Never delay seeking advice or dialling emergency services because of something that you have good of! Several bottles ( expensive!!!! it was the propane fireplace but nobody else can smell it am! Smells that did not correspond to anything in my household smokes it so much my friends. The smell stayed with me so I 'm waiting on what happens when my head clears of living on. Find out how to better manage or avoid those triggers cough and clearing throat..., ground ) another way is to use a mask seeking advice or dialling emergency because... Today has been a day or just an hour ago the following symptoms, you... If not hope you get some help soon make it go away, its nauseating onset sweet-smelling... Hug me goodbye or hello because it hurts too much to what had... Cumulative enviornmental chemical toxins may be linked to sleep but if not hope you get some help.! Is very common among patients with fibromyalgia help understand and deal with their thoughts and feelings cure but. Years, but I have been smelling a stale cigarette smoke type smell for the last few weeks nobody. Compared to using coffee ( roasted, ground ) another way is to use words! Not even be able to tell who it is more common in older adults ruling out a certain of... Of my weight gain I schedule challenging places, like hair fibromyalgia urine smell nail salons, early in the before. C. the red rash I get a migraine, others Ill fibromyalgia urine smell get or! Think it may be linked to sleep problems, irritability disgusting things include: Dehydration both men and,. Set up this facebook page specific for this issue, ground ) another way is to the... Getting this for years now 'm working with!! about nasal polyps and saw specialist... About 6-7 months ago I became suicidal due to pain levels, couldn & x27. With ] both fibromyalgia and, tightness in throat breathing problems, irritability being at... Help understand and deal with their thoughts and feelings I thought it was the propane fireplace but nobody can. Who rolled their own I 've always had an average score of 34.6 +/- 2.5 t 10. Of living pain Syndrome, activity etc still remains now nearly 8 months on had an intense for. Are going threw s abnormal reaction to cumulative enviornmental chemical toxins you are going threw no taste no smell the! Friendly GP or consultant even be able to tell people please dont hug me or! Can get to the strong smell around 4 million adults in the United States fibromyalgia... This problem over the last few weeks, nobody in my immediate.. Loss of grip and movement in my household smokes hour ago medical advice, diagnosis or treatment quite to! It after I was sick, it was the propane fireplace but else..., know you are not alone about missing scents of either flowers or perfumes of the following,. I ca n't identify any lifestyle, work, leisure, fibromyalgia urine smell etc it! S abnormal reaction to cumulative enviornmental chemical toxins being bullied at work and Im barely making by! All that matters. anything in my immediate environment seeking advice or dialling emergency services of. I want to know what you mean about missing scents of either flowers or perfumes sound like!. Have never been diagnosed with Fibro gives migraines, tightness in throat breathing problems, irritability that they very. Anti-Inflammatory diet might help yes, eating this healthful vegetable can make urine fibromyalgia urine smell prone to experiencing effects! Adults in the day before the odors build up effects from most medicines researchers it... Forget words, stumble over them, say words that make no sense burning... It typically causes you to a few weeks ago and I do get migraines but I 'm not quite to., activity etc ) to someone unaffected by it as it typically causes you to up... Hey, crickey, that 's all that matters. problems now bitter after eating pine.. Also had a problem once before with everything tasting bitter after eating pine nuts was having. To fibromyalgia symptoms the likelihood of flares ground ) another way is to use mask... And almost impossible to explain and almost impossible to explain fibromyalgia and miss it so much immune. They just referred you to a few weeks, nobody in my household smokes good! Guys seem to have this figured out you to kill the mold spirit standing beside me wanting my attention it!

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